Decisions, Decisions…

TW: mild reference to self-harm.

Despite feeling a bit rotten today, I forced myself over the front door under the impression that I was fighting the illness, trying not to let it beat me, getting exercise and filling my lungs with fresh air.  To put you in the picture, when I walk I always have my earphones in and mostly look at the ground (although the ‘eyes down’ habit is something I’m supposed to be working on) so I was a bit unnerved when a car pulled up alongside me.  Not to worry, though, it was my cousin.  She rolled down the window and asked if I was ok, told me I didn’t look great and tried to persuade me to jump in the car and accompany her on the errands she was running.  After much to-ing and fro-ing, I managed to convince her that I was ‘ok’ and my walk would do me good.

Firstly, I wondered how she knew I didn’t feel well.  To all intents and purposes, I was just a normal(??) person walking along, going about my business…wasn’t I?  I’ve always thought I’ve made quite a good ‘sad clown’, but obviously not.  My cousin knows pretty much everything about my illness: she has accompanied me to A&E, seen my scars, visited me at 7 in the morning when the rest of my household were on holiday and I was ‘home alone’, hugged me as I’ve cried, cried with me, made me countless cups of sweet tea.  I’m pretty sure there isn’t anything she wouldn’t do for me if she thought it would help.  In short, she has been a great support, a great friend, I love her and I owe her a lot.

On reflection, I realised my main reason for not going with her was that I knew she would start asking questions around my tendency to self-harm – whether I had hurt myself this morning, the extent of my wound, does it need attended to…a conversation I wanted to avoid, for obvious reasons.

Last Thursday, I attended A&E with SH injuries.  The Dr I saw was kind enough, but (not knowing me) didn’t want to let me go until he’d spoken to my CPN.  After a (very) brief telephone conversation he announced that she was happy for me to go home and that she would be in touch that afternoon.  Typically, I never received a phone call and have heard nothing from the CMHT since.  This is a pretty standard (non)response from my ‘care team’, but frustrating nonetheless.  I doubt very much they can do much more to help me, but I would like to feel that they at least gave me some thought: a quick phone call to check that I am safe or whether I would like someone to come out to the house…

Anyway, as a result of having communicated most of this ‘incident’ to my cousin, she would like to be present the next time I see my CPN.  From what she says, I think she just wants to gain a better understanding of how they operate, how they can neglect to contact someone whom they know is in crisis, how bad does it need to get before they ‘do something’?  I don’t for a minute think she will be rude, but I’m not sure if this is something I really want.  What will it achieve?  Will anything change around my care?  Will they blame me?  They are used, I’m sure, to having to defend their decision making and will doubtless have an answer for everything.

Does anyone else have any experience of this sort of thing?  Is it worth letting her have a chat with them?  Or will it merely exacerbate the situation?

Advertisements

6 thoughts on “Decisions, Decisions…

  1. They should really have contacted you. If you want your cousin to call, make sure the team are aware you are giving your consent to share information with them (assuming you are?). Otherwise you may find they refuse to talk to your cousin. Your cousin can call without your consent and they should listen but for a two way dialogue to occur, your consent is necessary. 🙂

    Like

  2. It is within your rights to have your cousin support you in the next meeting. You certainly won’t be blamed for her attendance. I have to be honest and say I’m not sure how much it will really change though. It’s unlikely your CPN didn’t contact you because she didn’t appreciate your crisis, it is likely to be a workload issue. Sadly. 😦

    Like

    1. Thank you for taking the time to respond. I know, having previously worked in the NHS myself, that CPNs and other MH professionals are stretched to say the least. I also know, having been ‘in the system’ for so long, that nothing much would change as a result of my cousin being there. But its peoples lives we’re dealing with here, and its frustrating to be on the receiving end.

      Like

      1. Oh yes, I definitely agree. I’m not justifying the predicted outcome, just looking at the unfortunate likely reality. I really hope that things do get better for you though, in terms of your own well-being and also the support you recieve x

        Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s